The Dalai Lama
Some diseases receive enormous amounts of media attention. Others are sidelined or not even recognized by most people. I had never heard the word “sarcoma” when suddenly I was thrust into the world of a terminal diagnosis with a few months to live.
What if I had known that my symptoms indicated severe danger, when I thought I was just having perimenopausal symptoms? How many lives can be saved by raising awareness so others can avoid the devastation I was fortunate enough to have lived through?
I had an incredibly rare sarcoma—and only one in 100 cancer diagnoses is for sarcoma, which is cancer of the connective tissues. The Sarcoma Alliance and Sarcoma Foundation of America want to raise awareness about this disease to help others recognize it and get treatment fast to save lives.
These foundations are asking the White House to name July as Sarcoma Awareness Month. At least 100,000 petition signatures are required by July 29, 2016 for the White House to consider this initiative.
Please sign the petition and share it with others.
Alongside this petition is a movement to name July 15 as LMS Awareness Day. LMS is short for leiomyosarcoma, a rare and deadly cancer. Ask your state legislators to pass resolutions similar to one passed in Michigan (email me and I’ll send the sample to you). Then ask your federal legislators to support this at the federal level.
The suffering of each individual with a rare disease does affect us all at some level. Advocate for others, and they will probably advocate for you as well.
Thriver Soup Ingredient
Here is a link to contact information when advocating to your elected officials: https://www.usa.gov/elected-officials